Upon admission in July 2013, Pablo Garcia was only 16 years old, a 10th grade student at a high school in Stockton, California. He hopes to one day become a car mechanic. Weighing in at around 85 pounds, he is quite small for his age, the consequences of his immune disease, NEMO syndrome, and the brutal devastation it has inflicted on his digestive system. .
Stockton is a two-hour drive from San Francisco, but with a declining farm-based economy and high crime rates, it’s far from the Sparkling Bay City. While Pablo had a primary care physician in Stockton, the city lacked the resources and specialists one found at a reputable research and teaching facility like UCSF, so he went to San Francisco. to receive care from an early age.
Ms. Blanca, Pablo’s mother, always protects her 4 children, especially Pablo and Tomás, both with NEMO syndrome. Her two sons are constantly battling infections – sometimes skin infections that are painful to cry, itchy, and blistering; Other times it was pneumoconiosis that caused her baby to cough and gasp. Their digestive system is never normal. Diarrhea may occur one week, nausea the next week, and bleeding the following week. They are malnourished; Tomás must receive his nutrition through a tube inserted into his small intestine. Whenever Pablo or Tomás was in the hospital, Blanca sat himself in the room, partly for support, but also in the end. Hospitals, she knows, can be dangerous places.
As luck happened, on the night of July 26, Pablo and Tomás were both hospitalized at the UCSF Medical Center. Since Tomás was the two children’s more severe illness, Blanca decided to spend the evening in her room, one floor from Pablo’s. But for that sad coincidence, she would be at Pablo’s hospital bedside when Brooke Levitt arrived with an unusual dose of Septra, the usual antibiotic he was taking, and would surely have all of them. Except for the nurse’s disposal before she can take 38 pills. . She still felt a bit of guilt when she wasn’t there — because no one understood better than her that Pablo should have been taking only one pill.
An overdose caused a serious seizure and Pablo stopped breathing. However, within a minute, Code Blue team arrived and was able to revive him from his brief apnea. Even in a place like UCSF, Code Blue is still a dystopia – Pablo’s mother watched in horror as half a dozen doctors, nurses, and pharmacists burst into the room, ignoring her as they carried out their job. methodically gave Pablo a respiratory protection. , install large intravenous lines and prepare, if necessary, to shock his chest (fortunately it didn’t come to that). They left almost suddenly upon entering; Once Pablo is stable enough to move, he is taken to the pediatric ICU at a speed like a trek, fortunately his convulsions are over and he is settled. His mother accompanied him there, wondering if this was the beginning of the decline that would end her son’s life.
Luckily, Pablo recovered in the intensive care unit over the next few days. On the morning of August 5, ten days after the overdose, the doctors were now ready to restart Pablo’s Septra.